PERSONALIZED HEALTH CARE: OPPORTUNITIES, PATHWAYS, RESOURCES
U.S.
This initiative includes funding for genome-wide association studies, methods of analyzing gene-environment interactions, environmental “sensors” that detect exposure, and measurement of diet and physical activity.
Available online at: http://www.hhs.gov/myhealthcare/news/presonalized-healthcare-9-2007.html
“….The achievement of personalized health care (PHC) rests on a dual foundation: the growing base of biomedical knowledge (especially related to genomic knowledge) and the adoption of interoperable health information technology.
To this foundation must be added the development of clinically useful products. In order to achieve that goal, appropriate regulatory structures will be needed to support innovation and adoption of safe and effective drugs, diagnostics, and procedures.
Finally, integrating personalized health care into clinical practice will depend on the development of medical evidence demonstrating that these approaches work for clinicians and patients. It will also depend on education and support for health care professionals to translate new knowledge into clinically useful procedures….”
Contents
Foreword by HHS Secretary Michael Leavitt.
Opportunities: Envisioning a New Kind of Health Care
Challenges: Prerequisites to Achieving Personalized Health Care
Pathways: Building Blocks of Personalized Health Care
Resources: HHS Programs Supporting Personalized Health Care
I. Expansion of the Science Base
· Genome-Wide Association Studies
· Genes, Environment and Health Initiative
· Human Genome Epidemiology Network
· National Health and Nutrition Examination Survey
· Cancer Research Programs Supporting Personalized Health Care
o Office of Biorepositories and Biospecimen Research
o National Program of Cancer Registries
· Heart, Lung, and Blood Research Programs Supporting PHC
· Eye Research Programs Supporting PHC
II. Health Information Technology
· American Health Information Community
· Office of the National Coordinator for Health Information Technology
· Health Information Technology Initiative
· Health Information Technology for Safety Net Providers
· Use of Medicare Data To Support Research on Health Outcomes
III. Intervention Development and Review
· Critical Path Initiative To Improve Medical Product Development
· Regulatory Submission of Genomic Data in Medical Product Development
· Review of Genetic Tests for Use in Clinical Practice
· Pharmacogenetics Research Network
IV. Integration Into Clinical Practice
· Health Data Standards and Genetic Information Resources.
· Evaluation of Genomic Applications in Practice and Prevention
· Roadmap for Medical Research: Clinical and Translational Science Award Program
· Cancer Biomedical Informatics Grid (caBIG™)
· Promoting Quality in Genetic Testing
· CLIA Oversight of Genetic Testing
· Promoting Effective Communication Between Laboratories and Clinical Settings
· Genetic Testing Reference Materials Coordination Program
· Evidence-Based Practice
· Effective Health Care Program
· Centers for Education and Research on Therapeutics
· Accelerating Change and Transformation in Organizations and Networks
· Practice-Based Research Networks
· Health Resources and Services Administration Resources To Support PHC
· Genetic Services Program
· Genetic and Newborn Service Screening Regional Collaboratives
· National Hemophilia Program
· Sickle Cell Service Demonstration
· National Cord Blood Inventory
· C.W. Bill Young Cell Transplantation Program
· Newborn Screening Quality Assurance Program
· Genetic Testing and Newborn Screening Disease Information Portal
· Family History
· U.S. Surgeon General’s Family History Initiative
· Family History Public Health Initiative
V. Privacy and Other Issues.
· Protecting the Privacy of Patient Health Information
· Secretary’s Advisory Committee on Genetics, Health, and Society
· National Committee on Vital and Health Statistics
· Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children.
Overview of Federal Health Care Delivery Programs
Glossary of Terms
HHS Agencies and Web Sites
HHS-Supported Web Sites of Interest
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